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: Verified by RoundPaper

FY 2024

Verified NonprofitLast Filed 2024EIN 93-0995453

Fanconi Anemia Research Fund Inc

EUGENE, ORNTEE: H900Founded 1989Website

mission statement

Our mission is to improve the lives of people affected by fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.

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Total Revenue

$4.3M

FY 2024

Program Spending

76.8%

of total expenses

Known Funders

2019–2024 filings

Key Metrics (FY 2024)

The Numbers

$6.4M

Total Assets

$5.6M net

12.29 mo

Operating Reserves

FY 2024

+22%

Revenue Growth

YoY

Total Employees

FY 2024

Funding Track Record

Backed by 65 Institutional Funders

$6.0M raised across 179 grants · +$358K committed (2019–2024 filings)

Funder Geography

Funders across 23 states (2019–2024 filings)

Institutional Funding by Year

PaidCommittedBoth

Funder	Location	Total Awarded
Knight Foundation	BEAVERTON, OR	$3,000,000
Kendall & Taylor Atkinson Foundation	LITTLETON, CO	$613,896
Klimkiewicz Family Foundation	Virginia Beach, VA	$510,000
M J Murdock Charitable Trust	VANCOUVER, WA	$214,500 +$257,500 committed
Network for Good Inc	Washington, DC	$206,293
American Online Giving Foundation Inc	NEWARK, DE	$170,727
Coleys Cause Charitable Trust Foundation	Raynham, MA	$162,000
Fidelity Investments Charitable Gift Fund	BOSTON, MA	$159,617
Tykeson Family Charitable Trust	OVANDO, MT	$130,000 +$100,000 committed
Donor Advised Charitable Giving Inc	SAN FRANCISCO, CA	$102,085

Total tracked: $5,956,645 across 179 grants · +$357,638 committed across 5 commitments (2019–2024 filings)

Totals reflect grants as reported on funder tax returns. Timing may not match recipient revenue: funder and recipient fiscal years often differ, and grants paid by a funder in one year may be recognized by the recipient in a different year.

Programs (FY 2024)

What They Do

$3.0M in expenses

Research initiatives - manages collaborative partnerships with external funders, manages grant award process, provides oversight and direction for the fanconi anemia cancer consortium, manages the virtual tumor board, manages the FCF clinical registry, oversees the fanconi anemia research materials project, maintains the fanconi anemia clinical care guidelines manual, convenes sparks meetings, manages friends data commons.

$676K in expenses

Events - annual planning meeting, annual family retreat, scientific, symposium, adult fa retreat, international summit, support for sparks and fa connect.

$557K in expenses

Community programs and support - onboards newly diagnosed families, manages adult council, manages winn/BYRD award, manages international support grant program, manages bereavement support, manages caregiver support, manages peer support, convenes fa connect sessions, manages advocacy and engagement program.

Financial History