$633K in expenses

The goals of the registry are to - empower the community of caregivers, family members, and people diagnosed with FTD - facilitate enrollment for FTD clinical research as a centralized, international database and communication hub- inform the FTD community on research and participation opportunities as a trusted, neutral, science-based non-profit voice- improve the understanding of FTD and its impact through survey-based, longitudinal research with persons diagnosed, family members, and caregivers - enable inclusive and secure research designs as a research partner for remote data collection (continued on schedule o)- leverage resources as a partner for all stakeholders - academic researchers, non-profits, government, and industry - who share a commitment to improving the quality of life of those affected by FTD