$334K in expenses

Research grants - provides funding to support research in the hunter syndrome space that fills critical gaps in current knowledge across basic science, critical care and translational therapeutics to improve the lives of those affected with hunter syndrome and their families.

$222K in expenses

Family case management - receives community enrollment forms from families, makes contact with the enrolled family to discuss programs offered by project alive and assists in finding needed resources, i.e.-clinical trial information, local support services, physician information, etc.

$194K in expenses

In person - the yearly family fair brings MPS ii families, the medical community, educators, and industry together to attend sessions on subjects important to the community. Families have the opportunity to talk with industry partners, other support organizations, and meet other families who are affected by MPS ii.

$5K in expenses

Helping hands program - this program is to recognize families that are dealing with a major medical crisis with their child or support for the death of a child. Project alive will send a $50-$100 gift card for food or gas to provide small relief for this time. We also send flowers from the board to funerals to honor the child.