Is this your organization?Claim your profile for free to personalize your presence and add a donate button. Learn more

Start Your Claim

Claiming and managing your profile is free. Enter any email you have access to. In the next step, we'll give you a small snippet to place on the organization's website to verify ownership.

Email address

We'll use this to process your claim and send important profile updates.

Need help? Contact us

: Verified by RoundPaper

FY 2023

Verified NonprofitLast Filed 2023EIN 46-3042112

Down Syndrome Diagnosis Network

STILLWATER, MNNTEE: G25Founded 2013Website

mission statement

To connect, support, and provide accurate information to families with a down syndrome diagnosis

Share this profile

Total Revenue

$562K

FY 2023

Program Spending

81.9%

of total expenses

Known Funders

2019–2024 filings

Key Metrics (FY 2023)

The Numbers

$628K

Total Assets

$608K net

11.79 mo

Operating Reserves

FY 2023

Active Programs

FY 2023

Total Employees

FY 2023

Funding Track Record

Backed by 20 Institutional Funders

$1.1M raised across 39 grants (2019–2024 filings)

Funder Geography

Funders across 15 states (2019–2024 filings)

Institutional Funding by Year

PaidCommittedBoth

Funder	Location	Total Awarded
Network for Good Inc	Washington, DC	$827,372
Paypal Charitable Giving Fund	WASHINGTON, DC	$143,812
American Online Giving Foundation Inc	NEWARK, DE	$69,109
Charities Aid Foundation America	ALEXANDRIA, VA	$13,557
The Dayton Foundation	DAYTON, OH	$10,000
National Down Syndrome Congress	ROSWELL, GA	$10,000
Hedinger Family Foundation	PORTLAND, OR	$10,000
National Philanthropic Trust	JENKINTOWN, PA	$9,000
Amazonsmile Foundation	SEATTLE, WA	$6,754
Raymond James Charitable Endowment Fund	ST PETERSBURG, FL	$6,000

Total tracked: $1,122,124 across 39 grants (2019–2024 filings)

Totals reflect grants as reported on funder tax returns. Timing may not match recipient revenue: funder and recipient fiscal years often differ, and grants paid by a funder in one year may be recognized by the recipient in a different year.

Programs (FY 2023)

What They Do

$507K in expenses

Connect - DSDN hosts annual retreats for moms and dads (separately) of children with down syndrome to allow them to connect, be inspired,recharge, and work on service projects for future expectant and newparents. The retreats are a 2-day event with meals included,motivational speakers, pampering sessions, and activities to promote connection amongst attendees. Revenue listed above includes registration and activity fees, exhibitor fees, and retreat sponsorships.

— in expenses

Inform - DSDN's board members and volunteers attend down syndrome related conferences to share information about DSDN's services to families, local down syndrome organizations, and medical professionals. DSDN team members also attend national medical conferences to advocate for an unbiased, up-to-date and factual down syndrome diagnosis forfamilies, as well as to share about DSDN's services. DSDN also creates and distributes materials on delivering a down syndrome diagnosis to local organizations and medical professionals.

— in expenses

Support - DSDN provides support to expectant and new families through online support groups, which are now part of a DSDN mobile app. DSDN also provides pregnancy gifts, new baby gifts, and welcome gifts when a new family joins our community, as well as care packages when a child is in the hospital, and memorial gifts when a child passes away. Each year, DSDN also offers adoption grants for families in the process of adopting a child with down syndrome. Also part of our support services, DSDN offers scholarships to attend the DSDN rockin' mom and rockin' dad retreats. DSDN also awarded grants to local down syndrome organizations.

Financial History