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Verified NonprofitLast Filed 2024EIN 38-2813140
The Ehlers-Danlos Society
NEW YORK, NYNTEE: E99ZFounded 1988
NEW YORK, NYNTEE: E99ZFounded 1988
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NEW YORK, NYNTEE: E99ZFounded 1988Website
mission statement
The ehlers-danlos society is a global orgnization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (eds) and hypermobilitiy spectrum disporders (HSD). We support the development of effective and equitable eds and HSD therapies and work collavoratively to impove the lives of individuals affected by eds and HSD.
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$8.7M raised across 90 grants · +$291K committed (2019–2024 filings)
Funders across 18 states (2019–2024 filings)
| Funder | Total Awarded |
|---|---|
| Vanguard Charitable Endowment Program | $2,856,881 |
| Mike & Sofia Segal Foundation | $2,812,216 |
| Network for Good Inc | $1,229,131 |
| Micky and Madeleine Arison Family Foundation | $1,000,000 |
| American Online Giving Foundation Inc | $187,497 |
| Hugh and Charlotte Maclellan Charitable | $165,000 |
| Paypal Charitable Giving Fund | $107,514 |
| Amazonsmile Foundation | $45,527 |
| Abramson Family Foundation Inc | $40,125 |
| Fidelity Investments Charitable Gift Fund | $35,422 |
Totals reflect grants as reported on funder tax returns. Timing may not match recipient revenue: funder and recipient fiscal years often differ, and grants paid by a funder in one year may be recognized by the recipient in a different year.
$2.1M in expenses
$1.0M in expenses
Chief Executive Officer
Chief Financial Officer
Board Member
Board Member
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