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: Verified by RoundPaper

FY 2023

Verified NonprofitLast Filed 2023EIN 30-0964243

Adnp Kids Research Foundation

Brush Prairie, WANTEE: H11Founded 2016Website

mission statement

ADNP Syndrome rare disease patient support advocacy education drug development and scientific research and funder of treatment studies and drug trials for ADNP syndrome. We are a 100% volunteer org working on research for drug development and a cure for ADNP syndrome.

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Total Revenue

$1.1M

FY 2023

Program Spending

99.7%

of total expenses

Known Funders

2019–2024 filings

Key Metrics (FY 2023)

The Numbers

$428K

Total Assets

$428K net

4.54 mo

Operating Reserves

FY 2023

+609%

Revenue Growth

YoY

Sector

NTEE H11

Funding Track Record

Backed by 10 Institutional Funders

$53K raised across 25 grants (2019–2024 filings)

Funder Geography

Funders across 9 states (2019–2024 filings)

Institutional Funding by Year

PaidCommittedBoth

Funder	Location	Total Awarded
Paypal Charitable Giving Fund	WASHINGTON, DC	$12,539
Gs Donor Advised Philanthropy Fund for Wealth Management Inc	NEW YORK, NY	$10,000
The Rice Family Charitable Foundation	Wilmington, DE	$10,000
Bwl Charities Inc	ATLANTA, GA	$7,500
The Geaton and Joann Decesaris Family Foundation Inc	DAVIDSONVILLE, MD	$6,000
American Tower Charitable Foundation Inc	BOSTON, MA	$2,600
Amazonsmile Foundation	SEATTLE, WA	$2,451
Ge Foundation	NORWALK, CT	$1,000
Jpmorgan Chase Foundation	NEW YORK, NY	$900
Amica Companies Foundation	LINCOLN, RI	$438

Total tracked: $53,428 across 25 grants (2019–2024 filings)

Totals reflect grants as reported on funder tax returns. Timing may not match recipient revenue: funder and recipient fiscal years often differ, and grants paid by a funder in one year may be recognized by the recipient in a different year.

Programs (FY 2023)

What They Do

$1.0M in expenses

UC Davis and MIND Institute research funding for gene therapy. Research and development investigating three 3 different gene therapy approaches in cells neurons and mouse model characterization including EEG and biomarker investigations. Three approaches to move forward with an AAV as the top program.

$38K in expenses

RareBase research funding repurposed drug identification. Phase 3 research and development investigating repurposed drug treatments that increase ADNP expression on human neurons. Final selection of top 10 candidates additional screening including lab work on top single candidate. *FINAL PAYMENT FOR PROJECT

$26K in expenses

Seaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput screening animal model characterization biomarker identification in neurons for efficacy in future treatment studies.

$21K in expenses

Program Services Related Other including contact registry patient registry office expenses business expenses information technology website expenses online security expenses and expenses for research and program related conferences and research meetings all program related.

Financial History