$5.9M in expenses

Global genes' programs provide next-generation patient advocates with a continuum of services to accelerate their path from early support and awareness through research readiness, using a collaborative approach that involves biopharma, researchers and funders, with data as a central core. We aim to have significant impact on the lives of people living with rare diseases by bringing the community together through our programs, which are designed to help participants develop the skills they seek to build and lead organizations, become research ready, and pursue the development of treatments. We equip advocates with the knowledge, skills, and connections they need to advance therapies and awareness for their communities.